Thursday, August 21, 2008

to work

Correct me if I'm wrong, but it seems to me a pervasive sense of concern and - worry, perhaps? - among the circles of special needs mothers I know as we steer closer to the start of school. In the supermarket, fellow mothers approach me and surreptitiously ask questions about placement, IEPS - is that teacher autism friendly? - within seconds of our perfunctory greeting. I receive furtive emails fraught with question marks from mothers who just want their kids to keep up and not suffer.

It is different this year because finally, at last, Miss M is blissfully ensconced in a loving and supporting environment, IEP-free, beholden to no district laws, and given the finest educational opportunities that our many dollars can buy. I no longer sweat the teacher, or the playground, or the lack of birthday invitations.

That doesn't mean that I don't remember,or feel your pain.

Just this morning, the unsinkable Miss Roxie began her first day of Kindergarten. To observe her, I understand the meaning of Kindergarten readiness; the social and academic perfectly measured and ready to go. In spite of her verbal pyrotechnics and saavy, Roxie was anxious. Nervous, even. She arose this morning, chattering and charming, modeling her uniform.

She vomited three times on the walk from the car to the school yard.

As she leaned over, careful not to hit her shoes, she sighed heavily and said, "Mom. Look. I know that I am going to do great at this. I'm just nervous because I don't know what is going to happen. Do you think you can understand how I'm feeling?" as she daubed at her mouth with a tissue.

And then she skipped into the ornate gates and proceeded to smile, hug teachers and wave goodbye.

The anticipation of the unknown. Roxie knew that her outcome was going to be great; she just needed to know the set up and flow.

I returned to work today. As I was walking through the courtyard, the mother of one of our top scholars approached me. Her seemingly "perfect" daughter was diagnosed with anorexia nervosa last week. Understandably, her mother is devastated.

She squeezed my arm. "You have no idea, Drama," she said, wiping a tear. "It just comes out of nowhere - and this damned disease is so pervasive and insidious. It just colors your whole family." She proceeded to go on about her concerns that her child would have to drop out of school, that she'd fall behind, that she won't recover - her worries were well-founded and not surprising.

And familiar.

I walked away and empathized with the mother. To receive a shocking diagnosis. To not know how to proceed. To worry that your child will never recover.

We know these feelings, yes?

Growing up is hard. Development is uneven and messy, and seemingly, challenges parents until children are well down the road to adulthood. (Okay, who's kidding?) Or beyond.

As parents, we wish to spare our children pain, to provide the answers that will allay fears and ensure success.

There is no magic bullet.

Instead, we must walk through the fire with our children, leading, guiding as well as we can, but truthfully? I don't know the path much better than you do; my knowledge is shaky at best, and my kids - most of the time - are far more facile at figuring out the paths and shortcuts.

I've been thinking alot about mission and purpose lately, and like Michelle O'Neil, I am certain that my daughters are here to do great things.

I used to think, for Miss M, that her "great things" would be in the future tense; that I sort of couldn't wait to get through this autism thing to get through to what she was really meant to do.

I realize now, that her great things are here now; the way that she challenges and inspires me, her perceptions and the way, quite simply, she has made me a better human being. A deeper human being. A human being who, yes, suffers and worries and whispers to my fellow comadres my darkest fears - but a human being who is, at the very least, living the unexamined life with two very, very astute teachers.

I have no good advice for you, or comfort, really. We move through it, softly or fiercely, but the point is, we do it together.

We get them through.

All is well.

26 comments:

Susan said...

Perfect, passionate and true.

Thank you.

kristenspina said...

Lovely. Thank you.

Delilah said...

So true. Wishing you and the girls a good school year.

gretchen said...

Oh my gosh- I'm about ready to vomit myself, reading about Roxie!! Hope she has a great day and year.

Thanks for all your support and calming/fortifying words.

jesswilson said...

how

i

love

you

a year and a half ago we got kendall's 'official' diagnosis from the 'official' experts. even though we'd been operating under the assumption of autism for nearly a year by then, i burst into tears when the doctor handed me the piece of paper.

she asked why i was crying, it's hard to explian that her question was neither patronizing nor absurd, but i assure you it was neither. somehow, thanks to her tone, it was compassionate.

i fumbled with my words. i said, 'because i just don't know what the future will hold for her.'

she smiled gently and said, 'mrs wilson, none of us knows what the future will hold for our children. you just have the dubious distinction of being AWARE of that.'

and i have the piece of paper to prove it i guess.

but i also have, as you do, the depth, the compassion, the awareness to show for it too. and i am so grateful for that.

darby made a family tree at the end of last year. she had to write on it what each person's 'role' was in the family. kendall, she said, made us all better people and better friends.

roxie will kick some kgarten @ss. miss m already is. and you, my dear .. well, you hit it out of the park each and every time.

love

Jenn said...

This is our last year at our "perfect school" and being IEP-free. I'm already growing nervous about next year and the challenges it may bring. But as you said, we will figure it out together and focus on the great things here and now.

Another awesome post, Drama Mama!

Niksmom said...

Ah, my dear, this post is another shining example of why I love you and your girls so very much.

And you are right —again— it is the connection, the going through and getting through it together. Our kids, I think, heighten our abilities to see, hear, and feel more with our entire beings than most parents get. If we are smart, we take advantage of that; if we are lucky, we share those gifts with one another.

Sending you and your girls much love and wishes for barf-free school days!

Maddy said...

I think that's the main point for me. You just never know what is around the corner. I always wanted to know what was around the corner so that I could 'be prepared' but most of the time we're [I'm?] just winging it.
Best wishes

Carrie Wilson Link said...

1) Ditto Susan.

2) That picture, and description of Roxie, is about the cutest thing I've ever seen/read.

3) I'll take all my kids' various diagnoses any day, over anorexia.

Michelle O'Neil said...

We get them through, but really it is them getting us through. All our stuff, they bring out and force us to move through it. These brilliant little teachers.

Congrats to Roxy on her first day of kindergarten.

Congrats to you for paving a beautiful path for Ms. M.

Kathryn said...

Yep, together we can make it. And, it's so true that how much we put on the future instead of what's happening now which is all that ever matters anyway. There are never any guarantees in life and I have really learned that.

Osh said...

I love your girls so much!
(and you too)

pixiemama said...

Wow. Thank you so much. Again.

Judith U. said...

Just read this after blogging ... I swear I didn't read you first. Swear! Man are we feeling the same vibe these days.

Who knows? Who knows anything?

kyra said...

so beautiful. and true.

Sustenance Scout said...

Love that photo, DM, and your many words of wisdom. Hugs, K.

Kim Stagliano said...

"Wherever we go, whatever we do, we're gonna go through it to-gether!" That's Gianna's new song. We moved across town and she was really anxious. I kept telling her, "We're a family. We're together. Always together, Gianna." Can you imagine her fear if for some weird reason she thought I was going to leave her behind? Or move her without us? I'm not sure what her worries were - she couldn't articulate them. But I knew she needed a solid, constant "hug." Then I sing the song with my best Ethel Merman impression (BTW, I'm great with voices, truly.) Every so often G will say to me - "together!" and smile at me. Yup. We're ALL together. Thanks. Drama.

KS

John Elder Robison said...

You're in your last years of protective mommyhood . . . When we get bigger, we "different children" take matters into our own hands. By the time we leave, the school officials wipe their brows in relief and wonder what strange adult toy will arrive in the mail next week.

COD of course.

That's the rallying cry . . . autistic and Aspergian kids arise! Kick ass and take names!

John Elder Robison said...

Twenty years from now you're going to look back and see I was right . . . the vast majority DO turn out OK

Woof!

bonbon momma said...

I wonder how I am ever going to make it to high school.
Thank you for putting my thoughts into words...

drama mama said...

Robison: Woof yourself. I love you, Dude!

Bonbon: You're going to get through it exactly like this: One.Day.At.A.Time.

Karen said...

Sometimes (like in this post) you say things so beautifully that no reply seems adequate.

And it's true, we don't want our children to suffer, but they do, because that's part of life...

The other night I was talking to Joel--he'd experienced a bad ending to his summer romance, and I said, "I want to protect you; I don't want you to be hurt," and in the dark, he whispered the words, "Too late."

Thank you, as always, for sharing.

kristi said...

Wow, as usual, you make me think AND CRY.

Melinda said...

I think your girls sound so very mature for their ages...and are little darlings!

Marla said...

Wonderfully said. I am glad grade K is going well. As Maizie sits here begging to go out and do something my blood boils. When will this place ever get back with me and get schooling going with M. I am about cracking up. Sigh. But, as you said...we do get through it.

Nancy said...

"Instead, we must walk through the fire with our children, leading, guiding as well as we can"

This is beautiful and inspiring. So hard to guide them when the path is foreign and we have no map for this.

Your strength comes through your incredible words. Thank you for this post.

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