Maybe it's the 91 degree heat here in otherwise London-foggy San Francisco. Maybe it's the back-to-schoolness of it all. I do know that my days have a sort of overexposed-photo quality to them, sort of as if my life were shot in a Steven Soderbergh film.
Anyhoo, we seem to be moving super slo-mo style in some sort of primordial goo, and managing to get through our days. Roxie has taken to Kindergarten like a fish to, well, water, and it's all learning all the time. She knows everything. Seriously. Just ask her. She reports on her classmates; who wore new shoes which day, and whose mother always comes late to morning circle. She can tell you what snack they will have next Tuesday at aftercare, and who farted in line.
She's off and running.
Miss M returned to her lovely little school with little fanfare; an old sage, she sauntered up to line and casually strode in with the group with nary a wave to my husband, who, by now, is 40 percent gray. Miss M, does feel, however, that it might take her some time to become accustomed to all of this socializing and play-dating that she was doing before the break; I just have to work my way back into it. It's exhausting being popular. She makes do with hanging with the new girl in her class, sitting on the bench at recess and telling stories, as the new girl isn't very active. Her legs hurt after PE. But I'm encouraging her to be athletic. Spoken from the kid who told herself stories alone on the bench for three years at her old school.
So, merrily we roll along. Hot and sweaty, but rolling.
Mama is in the thick of it at work; new position is kicking my ass with more beaurocracy, more meaningless meetings, more management of overworked, underpaid people. If I came home tired before, I positively drag my carcass up the stairs, scarcely able to do more than cook dinner, bathe children, and collapse into my pink sanctuary, lightly drooling.
Add to that a low-calorie diet with no frivolity or alcohol, and you've got a recipe for an epic meltdown.
My children are now school-aged. There is no more of the pulling-up of the pull ups, preschool, toddler anything, therapies, or cryptic emails home. For all intents and purposes, we're solid with this parenting thing. We know where we're headed, and by all accounts, we are looking good.
Miss M is pretty much who she is now - things seem to be preferences rather than problems, and it becomes a measure of motivation and desire to interact than deficit. For her, it's all about having the energy to - sigh - do the thing. Most of the time, she can get it up.
So what now? I am no longer dashing about to take M to therapies and groups, and betwixt and between, juggling rehearsals and classes. I no longer have this Autism thing pervading my every thought, sucking me dry of all of my energy. It's a consideration that comes and goes, but no, it's no longer the epicenter of my existence.
What remains is me, my job that has spread out exponentially, and my husband.
I look at him, and as I've mentioned, I can see how much we've weathered by the grizzle of his gray hair, the lines in his face, and the rounded stoop of his shoulders. God only knows how it's manifested on my body. I can't know.
I sit now, wondering, in the aftermath, who I am and why I'm here. What is my next move?
Sometimes people change after a life-changing event. Some emerge better for them. Some don't change at all. But couples? Changing together? In exactly the same ways?
I don't think it happens frequently.
I do know that I am scratching my head and looking over at my husband, who is yawning and staring at the wall, and wondering What happened to us? We've changed, certainly, individually - but together? What did we do before Floortime? What made us laugh, or have conversations unrelated to bills, schools, or children?
Emerging from post-traumatic stress syndrome, veterans often have a hard time finding peers - those who have similar experiences and can empathize. I have peers. All of you reading this, I'm willing to bet, are my peers, and judging from your comments, you are plenty empathetic.
I've been running with a partner, passing the baton, doing a good job with him. We're keeping the pace. As far as being in sync, or calculating movements - we are rusty.
Many posts ago, I posted some discontent about the attitude of the PTA at my daughter's school. I was hurting pretty bad, and everyone had a nice comment, or a suggestion. Carrie Wilson Link, bless her, simply said, "Having a special needs kid can be isolating sometimes. And lonely."
I was immediately relieved by her words, simply because she validated my feelings. She wasn't offering advice or a solution. She heard me. She saw me.
Sometimes that's all you need.
17 comments:
Every time I read about Miss M it makes my heart soar with hope and possibility.
We still have a long way to go with our own Miss M, but we too are starting to catch glimpses of a beautiful bright light at the end of the tunnel, and as it brightens my husband and I are slowly finding it easier to return more of our energy and attention to each other. When we're deep in the trenches, even if we go out for an evening it's more of a timeout, or even a way of running away for a few minutes, and the conversation remains focused on or impeded by the stress at home. Now that the stress is beginning to lessen we find we're more able to really listen to each other as human beings again, as adults, and friends, and lovers, not just as parents. I hope it's enough to make up for what came before. We have to make it be enough.
the first time you posted on my blog, I felt validated...
I raised Evan alone, (with help from my parents when he was a baby) still considered a newlywed after 3 years of marriage now...(and this marriage is so lonely)
...and up until the last few months of "knowing" you and the other bloggers have I let myself not be so alone...
for this I thank you
My husband's reaction to the idea of Henry's new school really showed me that we are in different places with the autism thing. Running the relay, as you said, but not IN THE SAME PLACE.
Hope you get re-accustomed to work and the heat lifts.
XO
Oh Sweetie! I hear you loud and clear! I'd be willing to bet that many, many of us hear you and share so many of the same thoughts and feelings for fear of...what? Judgment? Fear? Shame? Not wanting to be FIXED...just heard.
Thank you for the permission and leading the way.
It's so fucking difficult trying to not lose ourselves in the process of parenting our amazing children. And your children are amazing!
"It's exhausting being popular." Such words I'll bet you never thought would come from Miss M just a couple of years ago.
If she can find her way —with love and support —we can, too.
Love you. xo
I see you sister, and my ears are always open.
You are heaven, even when you are tired.
Tell us more of the
"pink sanctuary?"
it is always amazing to me to realize how differently matt and i have experienced our whole journey. i tell a story about the early days with kendall and he immediately says, 'that's not how it happened.'
the contrast never ceases to amaze me.
i don't know where the truth is, but i know that our differing perspectives on it is incredibly isolating.
with no disrespect to the dads, this process changes us - the moms - in ways so profound and so deep - to the core, truly - that i don't see how we can ever be those people we were before.
but i tend to wonder if changing 'together' ad remaining 'in sync' might not bore the hell out of people like you and me.
perhaps just a rationalization, but i'll continue to cling to it nonetheless.
i will say this: this is the man who reached for your hand at disneyland. takes a strong man to walk down main st usa with a woman of a certain age in pocahantus (sp?) braids.
just maybe he's also strong enough to hear that she's ready for a good laugh.
hearing you. understanding you. adoring you.
you are never, ever alone.
Yeah, what she said. (I love Jesswilson's comment...) I can relate so well to the husband thing. It's just not the same for him as it is for me. And I wonder often what will become of us. I don't really want to know the answer, I just want to keep moving forward and hope that our paths come together again somewhere out there beyond the woods.
I love hearing about Miss M.
I don't have anything brilliant to say about your relationship with your husband. I'm hopeful that you two can find new ways to connect.
Goddammit, I wasn't going to cry today!
I was already crying long before I got to the (best) part about me.
Here's one for you - marriage can be isolating, lonely, too. Damn. Lonely.
I've said it before, and I'll say it again: I love you, and everything about you - 'cept these flippin' tears you've turned on and now won't stop.
Last weekend my husband and I had an entire 24 hours to ourselves. We had no idea what to do without the kids. I never realized until then that it is so easy to lose yourself in this parenting thing, especially parenting a child with autism or any other kind of issue.
And, I just love reading about Miss M. She is giving me glimpses into the future that I hope is in store for Kate.
My hubby is a loving father and husband. But I don't think he has lost a minute's sleep over my son's issues. Staring at the ceiling in the middle of the night, obsessing over the (non-) implementation of the IEP, stewing over the problems on the school bus--it's always been my gig.
He doesn't love our boy any less than I do. And he has other burdens that I don't, I guess. But as far as our son goes, as Kristen says, "It's just not the same for him as it is for me." Most of the time I'm okay with that. Sometimes, not.
There is a corner of my brain that is always, ALWAYS thinking about my children. Maybe that's true for some/many dads, but I wonder.
I am so glad school is going so well. I understand what you are going through. I feel that way when M has a period of time without being sick from CVS.
I am looking forward to and praying that M's experience goes so well at the Autism Center that I find myself wondering what to do with myself. I soooo hope that is the case.
I understand what you are saying. It's definitley not the same for my husband as it was for me. Most certainly not. I am changed to the core of my being. It doesn't mean my husband doesn't love him any less, it's just been a hell of a ride for me. Now as my son starts kindergarten and we have just ended all services as if they never were here, it's so very strange. I don't have a communication notebook. I miss the little black and white book that told me everything about my son. Now I have to get my info from him. It's very very strange for me. No more therapy. His whole life was therapy. I am not complaining, it's something I am so very thankful for. But that doesn't mean I am frizzle frazzle burnt our fried and spent. So now I must go and get a job.
Hugs to you! You are so not alone!
You are one of my favorite bloggers - i totally get everting you say and it makes me laugh in a world of so much stress and freaking AUTISM! Thanks for the comic releif
Love ya, Drama. And Carrie, "marriage can be isolating, lonely, too. Damn. Lonely."
Oh how I can relate, especially today. Thank you guys. You are my peeps.
This will sound strange, but it was only after my boys began to do well that our marrieage showed the strain. During the "crisis" we hunkered down and did what needed to be done (both of us) until we fell into bed at night exhausted. It was only when we had the time, we began to really process the shock etc.
All,
You can't know what you all mean to me right now. It's good to know that you all struggle too, and that loneliness is part of the gig.
To borrow from Kathryn, you are MY peeps.
Post a Comment